Comments on: Best of Both Worlds podcast: Raising a child with special needs (plus doctor visits and sick days) https://lauravanderkam.com/2020/03/best-of-both-worlds-podcast-raising-a-special-needs-child-plus-doctor-visits-and-sick-days/ Writer, Author, Speaker Tue, 31 Mar 2020 16:48:57 +0000 hourly 1 https://wordpress.org/?v=6.7.2 By: Heather https://lauravanderkam.com/2020/03/best-of-both-worlds-podcast-raising-a-special-needs-child-plus-doctor-visits-and-sick-days/#comment-113665 Sat, 07 Mar 2020 18:32:01 +0000 https://lauravanderkam.com/?p=17563#comment-113665 This episode was especially interesting for me, as two of my three children have autism. They were diagnosed at exactly the same time, when they were 3 and 18 months. The sheer volume of appointments and therapies is mind-boggling; at one point we had NINE weekly appointments (speech therapy, occupational therapy, physical therapy, and music therapy for each child plus an extra hour of speech for one child) PLUS habilitation for about 20 hours per week. Habilitation is like rehab except it’s teaching someone how to do it for the first time since lots of kiddos with autism don’t pick up on social cues or learn from observing their neurotypical peers. There was no way to for both my husband and I to work full time and coordinate this schedule of early intervention. As a CPA, I was able to take advantage of a few opportunities to work a minimal amount per month. When my youngest went to kindergarten, I picked up another part time CPA job working remotely. This has worked really well for our family; my husband is able to travel as needed for his job while knowing that I am handling the logistics of kids. I especially empathized with Lee about the uncertainty of the future. At this point, I *think* all my kids will be independent as adults but as toddlers, there was no way to know or predict. As the kiddos have progressed, we have been able to scale back on some therapies, but we are still at the clinic two afternoons a week for OT and speech, which can make homework or any extracurricular activities a juggling act. Thank you for sharing your story Lee!!

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By: Middle class https://lauravanderkam.com/2020/03/best-of-both-worlds-podcast-raising-a-special-needs-child-plus-doctor-visits-and-sick-days/#comment-113331 Thu, 05 Mar 2020 22:08:54 +0000 https://lauravanderkam.com/?p=17563#comment-113331 I am a working mom of a special needs child. My husband stays home full time. I definitely agree that having a separate identity via work has been a life saver. When or if it is no longer feasible.for me to work, I think I will need a support group. It is a hard, hard road.

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By: Karen https://lauravanderkam.com/2020/03/best-of-both-worlds-podcast-raising-a-special-needs-child-plus-doctor-visits-and-sick-days/#comment-113296 Thu, 05 Mar 2020 19:31:16 +0000 https://lauravanderkam.com/?p=17563#comment-113296 In reply to Lee.

Makes complete sense! I find that even as the parent of a child who is on a typical developmental trajectory, I appreciate having another identity and place to go. There’s a lot of pressure on women in general to dial back work when they become mothers, and I imagine there may be even more pressure on mothers of children with special needs not to work or to dial back. And yet, it’s probably great for well being to have that other identity, not to mention practical things like the income and insurance employment bring!

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By: Lee https://lauravanderkam.com/2020/03/best-of-both-worlds-podcast-raising-a-special-needs-child-plus-doctor-visits-and-sick-days/#comment-113233 Thu, 05 Mar 2020 12:41:47 +0000 https://lauravanderkam.com/?p=17563#comment-113233 In reply to Karen.

This is Lee from the podcast. I didn’t really get into this on the show, but I definitely think that working full-time helps me mentally. It sort of allows me to have another identity besides “special needs parent.”

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By: Karen https://lauravanderkam.com/2020/03/best-of-both-worlds-podcast-raising-a-special-needs-child-plus-doctor-visits-and-sick-days/#comment-113141 Thu, 05 Mar 2020 03:14:48 +0000 https://lauravanderkam.com/?p=17563#comment-113141 Great podcast and thanks to Lee for sharing. I know a few mothers of children with special needs who have stopped working because it’s so demanding in terms of appointments etc. But I bet it’s also nice to have a job as a parent of a child with special needs, especially the kind of successful career it sounds like Lee does. It seems like it could be great for your well being to keep working.

I just presume my doctor’s appointments will run 15 to 40 minutes late. I could book first thing in the morning to try to avoid this, but I booked in the afternoon as it’s my less productive time and I can just bring work or a book with me. It’s not that big a deal as at this point I do not have frequent doctor’s appointments.

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By: Anu https://lauravanderkam.com/2020/03/best-of-both-worlds-podcast-raising-a-special-needs-child-plus-doctor-visits-and-sick-days/#comment-113078 Wed, 04 Mar 2020 20:27:20 +0000 https://lauravanderkam.com/?p=17563#comment-113078 Interesting about the wait times to see providers. I hadn’t realized how lucky I am to never have had to wait more than 10-15 minutes to see my OB or the pediatrician. I have had to wait about 40 minutes for an extensive ultrasound during pregnancy but that felt exceptional (and was not in my usual practice location)

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By: Laura Vanderkam https://lauravanderkam.com/2020/03/best-of-both-worlds-podcast-raising-a-special-needs-child-plus-doctor-visits-and-sick-days/#comment-113030 Wed, 04 Mar 2020 16:13:25 +0000 https://lauravanderkam.com/?p=17563#comment-113030 In reply to CNM.

@CNM – yep, I do this as often as possible. I sometimes get to thinking well, since I work for myself I can come in whenever, and then stop myself when I realize big chunks of the day might be shot. Better to ask for something a little farther out but early in the day.

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By: Laura Vanderkam https://lauravanderkam.com/2020/03/best-of-both-worlds-podcast-raising-a-special-needs-child-plus-doctor-visits-and-sick-days/#comment-113029 Wed, 04 Mar 2020 16:11:55 +0000 https://lauravanderkam.com/?p=17563#comment-113029 In reply to Laura Vanderkam.

@Laura – that comment was really a general discussion point, not just for @Alyce.

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By: Laura Vanderkam https://lauravanderkam.com/2020/03/best-of-both-worlds-podcast-raising-a-special-needs-child-plus-doctor-visits-and-sick-days/#comment-113028 Wed, 04 Mar 2020 16:11:29 +0000 https://lauravanderkam.com/?p=17563#comment-113028 In reply to Alyce.

@Alyce – great advice! Knowing you are not alone is so powerful.

As for scheduling, this is such an interesting science (and art). In general, I think most people are OK with not scheduling for events that are less than 5% probability. But what about 25%? To me, it seems that 25% happens frequently enough that it should be scheduled for. But that’s based on the idea that long waits are bad, whereas if someone perceives that the worst possible outcome is that a provider would not be booked for a potential time slot, well, that’s a different matter.

I think smart scheduling would allow for several breaks during the day, which could then absorb the inevitable tendency to fall behind. This is why several executives I’ve interviewed make sure to build in at least 2-3 30-minute blocks per day so when meetings run over the afternoon doesn’t fall like dominos. I know that in health care, sadly, the physician’s lunch often serves this absorption function, which is probably why people get burned out. I also know that people want to both maximize revenue (which doesn’t sound so nice) and offer people appointments when they ask for them (which sounds a lot nicer!), which always works against building slack into the system.

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By: CNM https://lauravanderkam.com/2020/03/best-of-both-worlds-podcast-raising-a-special-needs-child-plus-doctor-visits-and-sick-days/#comment-113023 Wed, 04 Mar 2020 15:53:56 +0000 https://lauravanderkam.com/?p=17563#comment-113023 Thankfully I do not usually have to wait to see a provider. Maybe it is because I like to make appointments early in the morning– often the 1st of the day– so then I’m not as susceptible to back ups? I’m usually up pretty early anyway (thank you children!) so it’s not a hardship.

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